It's been tough trying to gain and maintain my weight because I do breathing treatments four times a day, which leaves about three hours in between for me to eat and do my daily activities. I usually get hungry about an hour before my next treatment, but by then it's too late for me to eat because I wouldn't be able to keep it down during my next breathing treatment. Hopefully we can get me to gain some weight within the next week.
Please keep my family in your thoughts and prayers; this has been such a bumpy ride and I don't think we will really think it's going to happen until the night before or maybe even the morning of.
The only bummer of having the surgery now, is that I will be missing the annual Nutcracker with my Grandparents and cousins and 2nd cousins (shout out to Ava and Zoe : ) ), and I will most likely not be home for Christmas. I know that these things may seem trivial compared to having the opportunity to have a transplant, but I look forward to getting together with my family all year long. This was last years traditional pre-Nutcracker picture.
and a picture of my cousin and I at Christmas : )
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