For Daily Viewers

So I realize that some of you may visit this blog daily to see if I have written anything new, well today I DID! Sometimes I just don't think that things are worth writing about. I don't want to write in the heat of the moment because I might say something I may regret later; even though I can delete a post, you never know who has seen it in the time that it was up.

Well I guess I will share with you daily viewers what I did today.

I sat. I watched tv. I did my breathing treatments. I ate (when I had Boost Plus). I sat some more. and watch some more tv. I did my breathing treatments again. My Grandparents came to visit : ) this is what they brought me

adorable right? I think so : ) I ate again (well Boost Plus again). My Grandma and I played Go-Fish as while my Grandpa took a nap. Out of the 8 or so games we played I think I won two. Then I did my breathing treatments again again. Then my Dad came and we got to visit (he is still hear sitting with me, LOVE YOU DAD : ). Then I watched Ellen! Then I had a phone meeting for an hour. Now my Dad is talking about our chests being open. Gotta love my Dad. Now we are watching the Rams and Sea Hawks game. GO FOOTBALL! (sarcasm) 

That's my day so far daily viewers. Hope your day was FABULOUS (like how Jim Carrey would say in "How the Grinch Stole Christmas," look it up). 

Christmas Cheer

A little Christmas cheer....

http://sendables.jibjab.com/view/8VIOXrNq8rDYDcDr

(open the link to see my family sing)

A Good Night Sleep

One night in the hospital: to much to count the cost

Benadryl as a sleep aid: unknown

A good night sleep in the hospital: priceless

Last night I had the best sleep I ever had in the hospital. I am so thankful that God blessed me with a good nights rest after the kind of night I had before. It's hard to be in the hospital this time, before the transplant because there is nothing to do other than think about what's to come. I hope the next few days are easier.

Here We Go Again

I received a call this morning from the CF team saying that they want to bring me in today because the surgery has been scheduled for the 15th of December. I am praying that everything goes smoothly this time, because I have lost some weight and I know that I need to be a certain weight to have the surgery.

It's been tough trying to gain and maintain my weight because I do breathing treatments four times a day, which leaves about three hours in between for me to eat and do my daily activities. I usually get hungry about an hour before my next treatment, but by then it's too late for me to eat because I wouldn't be able to keep it down during my next breathing treatment. Hopefully we can get me to gain some weight within the next week.

Please keep my family in your thoughts and prayers; this has been such a bumpy ride and I don't think we will really think it's going to happen until the night before or maybe even the morning of.

The only bummer of having the surgery now, is that I will be missing the annual Nutcracker with my Grandparents and cousins and 2nd cousins (shout out to Ava and Zoe : ) ), and I will most likely not be home for Christmas. I know that these things may seem trivial compared to having the opportunity to have a transplant, but I look forward to getting together with my family all year long. This was last years traditional pre-Nutcracker picture.

 and a picture of my cousin and I at Christmas : )

Just Talking

A little update...

I was told that the date the team is looking at may not work out because right now they only have one OR available. So, they have been calling all of the surgeons using the ORs that day, to see if they are willing to change the date of their surgery to allow us to use the OR. I feel kinda rude asking someone else to move their surgery date, since they could have been planning on this for quite awhile. I won't know for sure if we can get the ORs till probably the end of next week. (They told me they should know Monday or Tuesday, but I don't think I will hear from them then). I just thought you might want to know the latest.