Well, my sister (Amber) and Dad got a call today from USC telling them that the transplant is being postponed yet again. For some reason they never call me.
The Reason Why: After the transplant there were going to be about five days where the surgeons who operated on us would be on vacation, but there would be another surgeon there. The operating surgeons didn't like that idea.
I won't tell you when the possible surgery will be because who knows what will happen from now until then.
This has been a troublesome day for my family because my Dad and Mom and already taken off work for last week's scheduled date, and my sister (Amber) had been working it out with school. As for myself, I am frustrated because I don't want to live this quality of life anymore. I had so much hope that life was going to get better in a couple of days (after recovery of course), but my hope has continually been taken away by the changing surgery dates.
The only hope I have left is in something God told me last Christmas.
HAVE A HAPPY THANKSGIVING!!!
Dear Bree,
ReplyDeleteI know your grandmother Arleen from our cardiac rehab classes, and she has been sharing your journey with me. I had a heart transplant two years ago, after having two rounds of cancer, a stem cell transplant, and 13 years of heart failure. I know how hard the waiting can be, and the constant changes in schedules and expectations. It took me 2½ years to get on the transplant list, and 9 more months of waiting for the transplant. So many times, I was incredibly frustrated by the delays, the additional tests, waiting for results, expecting something to happen only to have it postponed. I know that you get psyched up for the procedure, for getting it over with, for feeling better, finally, after all these years. No one can blame you for being upset or disappointed.
All I can say is that when it is done, when you have recovered, and when you can at last breathe freely, it will be worth all the delays and disappointments. I know that your surgeons must be taking your case very personally, to want to be sure that they are there for you themselves in your critical post-op period. I think that kind of dedication is important as their medical skills. I have had a few doctors along the way who acted like I was more a science experiment than a human being. But luckily, most of my doctors actually care, on a very personal level, how their patients are doing, and want to do their best for us.
I know from your grandmother, and I can see from your blog, that you have a devoted family and so many people who care for you and are praying for you. One thing my journey showed me was what an incredible man I married, and how amazing and supportive my family and friends are. You are obviously a very strong, intelligent, determined young woman, and I believe you have an amazing life ahead of you. I will add my prayers to those of your family and friends, and wish you and your family a Happy Thanksgiving, with many coming blessings for which to be thankful.
Best Regards,
Karen Bissonnette
Ahh Bree, I can feel your frustration and I'm frustrated for you. I can empathize with wanting a better quality of life.
ReplyDeleteI share Karen's words though, that the docs just want it to be right, and, that once it's over, it will have been worth the wait. That doesn't lessen the amount of tension you feel now, but hang on, something good is just around the corner.
I am keeping you all in prayer.
-Sally Wiker